OUR WORK
Human Rights for people with dementia -Webinar
Phyllis Fehr, ODAG & Dementia Alliance International Board Member & Human Rights consultant, gets down to the basics in this 1st ODAG webinar on the topic of Human Rights and the United Nations Convention on the Rights of Persons with Disabilities (UN CRPD). This is ground-breaking advocacy work in motion!
The Women of ODAG
Members of ODAG presenting at the First Link/Programs Exchange Conference on March 11, 2016. (on screen is Bill Heibein & Mary Beth Wighton; in person from left Bea Kraavenhof & Phyllis Fehr)
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I had the privilege of witnessing history recently at an afternoon workshop given by the Zurich Dementia Advisory Group. This was the first time people living with dementia were an integral part of a conference on dementia, in this case one sponsored by the Ontario Alzheimer's Association. After listening to ODAG's presentation and workshop facilitation it is clear there will be no turning back. The combination of their expertise and presence is too powerful and enlightening to ignore. I am confident that Friday, March 11th will be remembered as the start of a new period in the history of dementia support - a period in which the faulty assumptions about people with dementia are eventually overturned and the contributions of people with dementia are welcomed, expected and respected. How fortunate for all Canadians that ODAG has begun its pioneering work with such flair and confidence.
~Al Etmanski |
ODAG's Phyllis Fehr was profiled on CBC news January 5, 2016. She is challenging the stigma of dementia.
Our own Bill Heibein is being profiled in the Alzheimer Society of Ontario January awareness campaign. Have you met Bill?
Phyllis Fehr with organizers and sponsors of DementiaHack 2015, held in Toronto in November. She spoke to all the hackers, was a judge during the first round and also sat on the final judging panel.
ODAG's Phyllis Fehr speaks to the audience at The Canadian Consortium on Neurodegeneration in Aging (CCNA) first annual Partners Forum and Scientific meeting in Ottawa at the Bruyère on September 30 and October 1, 2015.
Media interview
Reaction from a reporter after interviewing the ODAG members. Amazing!
“Just wanted to thank you for setting up the ODAG call. It was honestly one of the most interesting and thought-provoking conversations I've ever had. I gained first-hand insights and new perspectives. Their message needs to be heard” – Laura DaSilva, Reporter, The Etobicoke Guardia/Metroland News
ODAG's Response to defeat Bill C-356
Bill C-356
A response to the Canadian Government's vote against Bill C-356
Update on Bill C-356 National Dementia Strategy
Perspectives from Mary Beth Wighton
More information about Bill C-356: Tory MPs should support Bill C-356
On February 4, 2015, members of the Zurich Dementia Advisory Group (from left, Bea, Jim and Maisie) met with Ms. Indira Naidoo-Harris, parliamentary assistant to the Minister of Health and Long-Term Care, to discuss the development of an Ontario Alzheimer's and Dementia Strategy.